Identifying facilitators and barriers associated with caring for individuals with intellectual disability who were at risk of hospital admission
| Date | 23 December 2024 |
| Pages | 49-60 |
| DOI | https://doi.org/10.1108/AMHID-01-2024-0004 |
| Published date | 23 December 2024 |
| Author | Rohan Morris,Laura Chadwick,Syeda Hasan,Ameera Iqbal,Dipti Patil |
Identifying facilitators and barriers
associated with caring for individuals
with intellectual disability who were
at risk of hospital admission
Rohan Morris, Laura Chadwick, Syeda Hasan, Ameera Iqbal and Dipti Patil
Abstract
Purpose –This study aims to explore theexperiences of professional carers for people with intellectual
disabilitieswho were ‘‘at risk’’ of hospital admissionand to identify factors which were helpful or restrictive
in the supportreceived from health-care servicesduring this time.
Design/methodology/approach –Semi-structured interviews were conducted with eight professional
carersfrom NHS trusts. Data was analysed usingthematic analysis.
Findings –Three main themes and 11 subthemes were identified. The first theme discusses the
processes implemented to facilitate change while the person was at risk of hospital admission. The
second theme identifies social and environmental factors increasing risk of hospitalisation. The third
theme wasthe support received by staff.
Originality/value –To the best of the authors’ knowledge,this study was the first to gather and analyse
data on carer’s experiencesin supporting an individual with intellectualdisability who is at risk of hospital
admissionwithin the locality of Greater Manchester.
Keywords Intellectual disability, Risk management, Hospital admission,National health service,
Dynamic support register, Transforming care agenda
Paper type Research paper
Introduction
In 2011, a BBC documentary uncovered abuse towards individuals with intellectual
disability (ID) and autism, occurring at Winterbourne View private hospital (Plomin, 2013).
This fuelled investigations into the care of adults with ID, of whom estimates suggest
there are 1.5 million individuals living in the UK (Office for National Statistics, 2024). The
NHS initiated an urgent response to transform the quality of care of these individuals,
both within inpatient settings and in the community (Bubb, 2014). The Care and
Treatment Review: Policy and Guidance document (NHS England, 2015a,2015b,2015c;
NHS England, 2017) was developed as a part of an initiative towards the Transforming
Care Agenda, which states it aims to improve the care and quality of life for people with
an ID and/or autism, as well as enhancing community capacity and reducing
inappropriate admissions to hospitals. Within this initiative, the term “dynamic register” is
used to describe a compilation of records, held by Clinical Commissioning Groups (now
“Integrated Care Boards”) to identify individuals with an ID and/or autism, who have
mental health problems and/or challenging behaviour within their locality, according to
risk of admission to hospital settings.
Rohan Morris,
Laura Chadwick and
Syeda Hasan are all based at
the Learning Disability Care
Hub, Pennine Care NHS
Foundation Trust,
Ashton-under-Lyne, UK.
Ameera Iqbal is based at
Research and Innovation
Department, Pennine Care
NHS Foundation Trust,
Ashton-under-Lyne, UK.
Dipti Patil is based at the
Learning Disability Care
Hub, Pennine Care NHS
Foundation Trust,
Ashton-under-Lyne, UK.
Received 16 January 2024
Revised 23 May 2024
8 November 2024
Accepted 21 November 2024
With thanks to Dr. Ceri
Woodrow, Mizla
Manandhar-Richardson and
Cheshire and Wirral
Partnership NHS Trust for
support in the development of
this project.
DOI 10.1108/AMHID-01-2024-0004 VOL. 19 NO. 12025, pp. 49-60, ©Emerald Publishing Limited, ISSN 2044-1282 jADVANCES IN MENTAL HEALTH AND INTELLECTUAL DISABILITIES jPAGE 49
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