North Cumbria and North East Transforming Care, transforming lives case study
| Pages | 25-30 |
| DOI | https://doi.org/10.1108/AMHID-03-2018-0011 |
| Published date | 15 February 2019 |
| Date | 15 February 2019 |
| Author | Ursula Turner |
| Subject Matter | Health & social care,Learning & intellectual disabilities |
North Cumbria and North East
Transforming Care, transforming
lives case study
Ursula Turner
Abstract
Purpose –The purpose of this paper is to describe how, as part of a national initiative led by NHS England and
key partners, it is transforming lives by helping people with a learning disability, autism or both to live more
independent and better quality lives in their own home rather than spending many years in hospital unnecessarily.
Design/methodology/approach –The methodology applied was to capture the real experience of a
person with a learning disability, autism or both who successfully moved from long-term hospital care to
home. This was achieved through developing a narrative story by capturing their experiences in their own
words and the words of the individual’s support team who made this life changing event possible.
Findings –This story shows how with the right planning and support, people with a learning disability can live
in their own homes, gain their independence and be supported to take risks.
Originality/value –This is an original case study that has not been published previously and has been
written for the sole purpose of this journal.
Keywords Autism, Learning disabilities, Transforming care, Building the Right Support,
Care and Treatment Reviews, Promoting independence
Paper type Case study
Remaining in hospital for longer than is clinically appropriate can limit life chances and opportunities.
Children, young people and adults with a learning disability and/or autism have the right to the same
opportunitiesas anyone elseto live satisfying and valuedlives, and to be treated withdignity and respect.
They shouldhave a home withintheir community, be ableto develop and maintainrelationships,and get
the support they needto live healthy, safe and rewarding lives.(Building the Right Support 2015)
The national publication, Building the Right Support (BRS) (NHS England, 2015) in October 2015
put into context the need to continue to reduce the over reliance on inpatient treatment for
children, young people and adults with a learning disability and or autism who could, given the
right support, be at home and closer to their families and loved ones. This means building on
previous experience and implementing a quantum shift in how care and treatment is provided to
children, young people and adults with a learning disability, autism or both. Nationally, we need a
change in culture, a shift in power to individuals and a significant change in the way in which
episodes of care are provided.
Implementation of BRS means transformational change is now happening across England,
where strong local leadership is building a new generation of community-based services. In total,
48 Transforming Care Partnerships (TCPs) have been set up across the country to work with
people with a learning disability, autism or both and their families and carers to agree and deliver
local plans that give people the opportunity to lead better quality independent lives with support
in their own home or a home-like setting matched to their preferences and needs.
This case study sets out the policy drivers for change and shares one story of how the
Transforming Care Programme is transforming lives in North Cumbria and the North East by
Received 16 March 2018
Revised 4 May 2018
Accepted 8 May 2018
The author would like to
acknowledge and thank
individuals with a learning
disability, autism or both and
partners across Northern England
for their contributions.
Ursula Turner is based at the
Sustainable Improvement
Team, NHS England,
Leeds, UK.
DOI 10.1108/AMHID-03-2018-0011 VOL. 13 NO. 1 2019, pp.25-30, © Emerald Publishing Limited, ISSN 2044-1282
j
ADVANCESIN MENTAL HEALTH AND INTELLECTUAL DISABILITIES
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PAGE25
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