Developing and piloting the QOMID – quality outcome measure for individuals with intellectual disabilities and dementia
| Pages | 298-311 |
| Published date | 02 November 2015 |
| DOI | https://doi.org/10.1108/AMHID-12-2014-0041 |
| Date | 02 November 2015 |
| Author | Karen Dodd,Alick Bush,Alexandra Livesey |
| Subject Matter | Health & social care,Learning & intellectual disabilities |
Developing and piloting the QOMID –
quality outcome measure for individuals
with intellectual disabilities and dementia
Karen Dodd, Alick Bush and Alexandra Livesey
Dr Karen Dodd is based at
Surrey and Borders
Partnership NHS Foundation
Trust, Surrey, UK.
Dr Alick Bush is based at
St Andrews Healthcare,
Nottingham, UK.
Dr Alexandra Livesey is Clinical
Psychologist at Surrey and
Borders Partnership NHS
Foundation Trust, Surrey, UK.
Abstract
Purpose –Outcome measurement is a key priority for services. There are no papers on specific overall
quality outcome measures for people with intellectual disabilities who have dementia. The purpose of this
paper is to describe the development and piloting of a new measure.
Design/methodology/approach –A process was developed to measure quality outcomes across all
stages of dementia. The reliability of the tool was measured using Cronbach’sαcoefficients, along with data
about its clinical utility.
Findings –The QOMID has good reliability, face validity and internal reliability suggesting that all domains
contribute equally towards the construct of quality outcome. An exploratory factor analysis revealed that
there may be four or five sub-factors within the QOMID, The clinical utility of the assessment tool was
explored and it can be concluded that the QOMID is simple, fairly quick and effective.
Research limitations/implications –The scale has good psychometric properties and the initial
parameters for the QOMID were met. Further exploration of factors needs to be considered with a larger
sample of participants.
Practical implications –The scale was liked by assessors and gives a practical tool that can both measure
the quality outcome for people at each stage of their dementia, and help to develop more effective care plans.
Originality/value –This is the first measure to look at quality outcomes for people with intellectual disabilities
and dementia and which takes a staged approach.
Keywords Outcomes, Psychometrics, Dementia, Staff, Intellectual disabilities, Improving care
Paper type Research paper
1. Introduction
Person centred care is the focus of attention for both people in the general population and
people with intellectual disabilities who develop dementia, with an increasing emphasis on what
constitutes good person centred care. National guidance in the UK (SCIE, 2009) emphasised
that “high quality support for people with dementia begins with the recognition that each person
is an individual with their own needs, preferences and life story”.
Within the field of intellectual disabilities there has been a longstanding focus on person centred
care. O’Brien’s“five accomplishments”(respect, choice, participation, relationships and
ordinary places) were the foundation for person-centred planning in the USA (O’Brien, 1989).
Person-centred planning was adopted as government policy in the UK through the “Valuing
People”White Paper in 2001 (Department of Health, 2001).
A series of scandals and reports of abusive practice in the UK concern the neglect, abuse and
deaths of predominantly older people (e.g. The Francis report (Francis, 2013) CQC report on
Received 31 December 2014
Revised 18 February 2015
Accepted 11 May 2015
PAGE298
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ADVANCESIN MENTAL HEALTH AND INTELLECTUAL DISABILITIES
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VOL. 9 NO. 6 2015, pp.298-311, © Emerald Group Publishing Limited, ISSN 2044-1282 DOI 10.1108/AMHID-12-2014-0041
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