Do demographic, and clinical characteristics influence meeting NICE quality standards for young people transitioning to adult intellectual disability services?
| DOI | https://doi.org/10.1108/AMHID-12-2021-0051 |
| Published date | 19 August 2022 |
| Date | 19 August 2022 |
| Pages | 189-198 |
| Subject Matter | Health & social care,Learning & intellectual disabilities |
| Author | Paul Soper,Alex G. Stewart,Rajan Nathan,Sharleen Nall-Evans,Rachel Mills,Felix Michelet,Sujeet Jaydeokar |
Do demographic, and clinical
characteristics influence meeting NICE
quality standards for young people
transitioning to adult intellectual disability
services?
Paul Soper, Alex G. Stewart, Rajan Nathan, Sharleen Nall-Evans, Rachel Mills,
Felix Michelet and Sujeet Jaydeokar
Abstract
Purpose –This study aimsto evaluate the quality of transition from child and adolescentservices to adult
intellectualdisability services, using the relevantNational Institute for Health and CareExcellence (NICE)
standard(QS140). In addition, this study alsoidentifies any differences in transitionquality between those
young peoplewith intellectual disability withand without autism.
Design/methodology/approach –Using routinely collected clinical data, this study identifies
demographic andclinical characteristics of, and contextual complexitiesexperienced by, young people
in transition between 2017 and 2020. Compliancewith the quality standard was assessed by applying
dedicatedsearch terms to the records.
Findings –The study highlighted poor recording of data with only 22% of 306 eligible cases having
sufficient data recorded to determine compliance with the NICE quality standard. Available data
indicatedpoor compliance with the standard.Child and adolescent mental health services,generally, did
not record mental health co-morbidities. Compliance with three out of the five quality statements was
higher for autisticyoung people, but this only reached statisticalsignificance for one of those statements
(i.e. havinga named worker, p = 0.02).
Research limitations/implications –Missing data included basic clinical characteristics such as the
level of intellectual disability and the presence of autism. This required adult services to duplicate
assessment procedures that potentially delayed clinical outcomes. This study highlights that poor
compliance mayreflect inaccurate recording that needs addressingthrough training and introductionof
shared protocols.
Originality/value –To the best of the authors’ knowledge, this is the first study to examine the
transition processbetween children’s and adults’intellectual disability health servicesusing NICE quality
standard140.
Keywords Learning disability, Mental health, Young people, Adolescent, Autism,
NICE quality standards
Paper type Research paper
Introduction
Transition to adult services is recognized to be difficult for young people and their families,
with some of the problems identified being poor communication between services
(Gauthier-Boudreault et al.,2021;Culnane et al.,2020;Brown et al.,2019;Franklin et al.,
2019), a relative lack of appropriate adult services (Piccoli et al., 2020;Culnane et al.,2020;
(Informationabout the
authorscan be found at the
end of this article.)
Received 11 December 2021
Revised 16 April 2022
Accepted 9 May 2022
©Paul Soper, Alex G. Stewart,
Rajan Nathan, Sharleen
Nall-Evans, Rachel Mills, Felix
Michelet and Sujeet Jaydeokar.
Published by Emerald
Publishing Limited. This article
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Commons Attribution (CC BY
4.0) licence. Anyone may
reproduce, distribute, translate
and create derivative works of
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and non-commercial
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DOI 10.1108/AMHID-12-2021-0051 VOL. 16 NO. 4 2022, pp. 189-198, Emerald Publishing Limited., ISSN 2044-1282 jADVANCES IN MENTAL HEALTH AND INTELLECTUAL DISABILITIES jPAGE 189
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