Doing research together: bringing down barriers through the ‘coproduction’ of personality disorder research

Date14 December 2010
Pages29-35
Published date14 December 2010
DOIhttps://doi.org/10.5042/mhrj.2010.0736
AuthorSteve Gillard,Kati Turner,Marion Neffgen,Ian Griggs,Alexia Demetriou
Subject MatterHealth & social care
Mental Health Review Journal Volume 15 Issue 4 December 2010 © Pier Professional Ltd 29
10.5042/mhrj.2010.0736
CO-
PRODUCTION
Steve Gillard
Senior Lecturer in Social & Community Mental Health, St George’s, University of London, UK
Kati Turner
Service User Researcher, St George’s, University of London; Chair, Emergence, UK
Marion Neffgen
Psychiatry Speciality Trainee, South West London & St George’s Mental Health NHS Trust, UK
Ian Griggs
Independent Carer Consultant, UK
Alexia Demetriou
Researcher, St George’s, University of London, UK
Doing research together:
bringing down barriers through
the ‘coproduction’ of personality
disorder research
Abstract
Background: historical assumptions and knowledge about personality disorders (PDs) have inhibited
efforts to improve PD services. Public and patient involvement in research has become a requirement of
UK health services research. The potential for people with personal experiences of PD to ‘coproduce’
research knowledge as a means to transform PD services is largely unexplored.
Objectives: to consider the extent to which research teams on two recent projects have ‘coproduced’
knowledge about PD, and the potential impact of coproduction on research findings and service delivery.
Setting: two qualitative research projects were conducted by teams comprising conventional academic,
clinical, service user and carer researchers. Reflective writing by researchers was analysed thematically to
explore research objectives.
Findings: researchers reported that their high expectations of research coproduction were mostly met,
that findings would have been different without involvement of service user and carer researchers, and that
the research would have wider credibility because of their involvement.
Conclusions: coproduction is characterised by enabling perspectives from outside the conventional
clinical-academic health research team to inform the research decision-making process, and by self-
conscious reflection to make explicit how findings are shaped as a result. The potential to improve PD
services by coproducing knowledge was demonstrated.
Key words
Personality disorder, research, coproduction, delivery of services.

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